I’ve never written a post about this before but I am asking for your help with a cause – Huntington’s Disease (HD). We have a family member that has been diagnosed and exhibits symptoms of Huntington’s, watching this disease progress over the years can be heartbreaking. We also have other family members that are at risk. I’m not asking you to send a donation (although that’s awesome if you want to!) but would you please visit this page to view & sign a petition for the Huntington’s Disease Parity Act? Although this petition is specifically for people residing in Indiana you may want to check to see if there is something similar that you can sign for your state.
Many people haven’t heard of Huntington’s Disease or they know the name but don’t understand what this disease does. This page gives a great overview of the disease, take a few minutes to educate yourself so you can help educate others. Since HD affects 1 in 10,000 people there are even some medical personnel that haven’t seen, and don’t have a basic understanding of, this disease! Thus far there is no cure for this disease and treatment is limited to helping the various symptoms.
The petition I am asking you to sign will help those with the disease more easily gain access to the Social Security disability benefits and Medicare coverage they need. The current criteria is outdated and vague, which causes most patients to routinely be denied coverage forcing them to go through appeals and a lengthy, stressful process to gain coverage. The Huntington’s Disease Parity Act, Re. H.R. 678, would require the Commissioner of Social Security to revise the medical criteria for evaluating disability in a person diagnosed with Huntington’s Disease and to waive the 24-month waiting period for Medicare eligibility for individuals disabled by Huntington’s Disease. Recently WTHR, Channel 13, in Indianapolis presented information about Huntington’s Disease and this petition, to view that video click here.
I appreciate your help!